"Deeply moving." -Eva Hagberg Fisher, bestselling author of IT'S ALL IN YOUR HEAD.When she is twelve years old, Bethany discovers the reason her grandmother wears leg braces—and it has something to do with how Bethany herself has started tripping, falling, and losing her grasp on objects. The cause? Charcot-Marie-Tooth, an inherited genetic disorder (or is it a disease?). How does it feel? Like a ...
Paperback: 180 pages
Publisher: CreateSpace Independent Publishing Platform (February 15, 2017)
Product Dimensions: 5.5 x 0.4 x 8.5 inches
Amazon Rank: 683552
Format: PDF ePub fb2 djvu ebook
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Bethany Meloche's compelling memoir, "How Should A Body Be," is the story of her diagnosis with CMT at the young age of twelve, its implications as it interferes with what had been her normal childhood, and her anticipation of a future filled with no...
t has wrecked her once idyllic childhood. And yet, CMT isn’t everything; Bethany grows up, goes to college, falls in love, and learns that the person she has become is, at her heart, the person she always was—just with braces. HOW SHOULD A BODY BE? is a coming of age story, a family story, and above all a love story that happens to be set against the backdrop of its titular question.